C is my nice Didi!!!C is me, its small MimiMy Didi!!


 

                                                                  

                                                                                         It is me! Its small mimi!!!

  My Dino suffers since almost 10ans from a chronic and evolutionary disease and still little known: the CIDP, CHRONIC IMMUNE DEMYELINATING POLYNEUROPATHY ***

In fact the TCELL of blood destroy the myeline of the  nerves!!! **** Nobody know how comes this disease, how  catches it, the stress? an infectious disease? a bacterium, alcoholism? depression? ***

Here the troop of tortures which this disease can inflict:

*** Great weakness in all the body, feeling of burn in the parts of the body, impossibility of controlling his body temperature, pinchings, tinglings, atrophies muscular, serious eye trouble, whistling in the ears, tensions muscular, difficulties of swallowing, constipation, difficulty of urinating, great difficulty of breathing deeply, insensitivity, partial paralysis, that can go until the total paralysis and death by asphyxiation, turbid of balance, pain in all the body, migraines, it is a true beachcomber of disordered states of the body and also a torture of the spirit!!!! Days ago he turn arround shouting and crying, after he breaks down exhausted! *****

Treatments??? There is, but they are not curative and have side effects .....

Intravenous cortisone drifts in injection, immunosuppresseurs, anti-epileptics, antidepressants, myorelaxants, injections of human immunoglobulins, and others, vitamins B, fish oil, beef colostrum….

And the cost !!! Very expensive ..... The 5 days treatment to the immunoglobulins coust 3-4000$ and it should be remade sometimes several times!!!!

More all other physical drugs, therapies, and visits in the neurologist!!

We pay our pocket because we do not have any more an insurance! I explain you all in our history.

Years of sufferings, humiliations, of incompréhention of the family and doctors who did not know this disease!!!!

To finish by all losing .....

*** In our history, I open the door of our life to you, in opened heart, in all sincerity ******

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

 I will hold with the current my faithful Net surfers in connection with the evolution of the disease of Dino *****

*** At the end of February 2006 ***:

  Dino has in addition to serious problems to the cervical ones!

The continuous troop of the torments!!! Dino undoubtedly will have to be operated! They in first will try to improve his general state.....

I beg you, make me a gift! I am not lazy!!!!I am with my bag on the wall!!! I do not have an other choice only to beg you! Thank you for any heart!
 **** We are on MARCH first, I seek to borrow money for the treatment with immunoglobulin of Dino, but they asks me interests, to much!, They know that I am taken by the throat!!  I ONCE AGAIN BEG YOU IF YOU HAVE OF THEM THE MEANS MADE ME A GIFT! Saturday March 5: Dino is very badly, he cannot go almost more, he has difficulties to swallow and does not see almost any more!!!!!  Here the last photograph, today, 4 days treatment to the SOLUMEDROL, to make him hold on because I do not have money for immunoglobulin nor for the operation!!!!!!!
Thursday June 1
Dino is very bad!!!Now he is only 50 kg(1m78)
He is more and more paralysed and almost blind
He cry all day and ask me to kill him
I was thinking that it still have some good and generous people in the world,but ......I made a mistake to think so......NOTHING>>>>>>>I am very down and depressed!

**

 If you have the CIDP do not hesitate to contact me, if I can be useful for you ***

Didi au plus mal...                                                                        moi en infirmiere!!

Please!!!I really need your help!!!!!

Make me a donation with the button down here,it is safe!!!!

GOD BLESS YOU!!!!!